Wow we have had a busy summer thus far. Here’s our overview:
June 12th: We received free Twins tickets and took Reagan to her first Twins game!! She had so much fun and was so cute sitting so nicely with us at Target Field. She also had fun eating the stadium food including a brat!
June 14th: Reagan participated in her first bike race!!! The Nature Valley Grand Prix bike race was in Minneapolis and we entered her in the kids “race”. She loves bikes so every other word was BIKE. She was by far the youngest and littlest racer and she got lots of attention. We had friends cheering for her during the event and I truly think she liked all the attention. At one point she stopped and looked at the crowd and gave a little smirk. It’s amazing to think that she’s now just like every other toddler; we truly had a hard time seeing this in our future when she was so sick, on O2, multiple meds and 100% tube-fed. Our faith has kept us strong during this journey.
June 17th: A not so happy father’s day. Scott was so excited to spend the day biking on the Cannon Valley bike trail for Father’s day but it ended in the urgent care. Scott caught some loose gravel and crashed his bike resulting in a slight concussion, road rash and a huge bump on his cheek. Reagan wasn’t phased in the least bit, thank God for that but Scott spent a few days recovering.
June 23rd: This is the second year we participated in the HeartBeat 5000 with a very special family who lost their son from a heart defect. We had an amazing day honoring him and saw lots of friends.
June 27th: I have such a mix of emotions when it comes to writing about special events that we participate in for Eden. On one hand I am so happy that we can honor her short life in such a special, meaningful way but on the other hand I’m so sad because I don’t want to have to honor her life this way. LifeSource which is the local organ procurement/donation organization has included us in donor celebration activities so we were invited to attend the Donor Family Celebration on June 27th. There was a beautiful ceremony with stories from a donor family member and from a donor recipient followed by a heartfelt message from Mark Ritchie and a presentation of medals of honor for each family by Mark Dayton. We loved having Reagan there to honor her sister and to receive the medal but again our hearts ached as we thought about our life without Eden.
June 30th/July 4th: Reagan was able to watch both mom and dad compete in events. Scott completed an Olympic distance triathlon and I did a 5 mile HOT run on July 4th. She is so cute and she’s our best cheerleader!!! She even got a high five from Dad before the finish line at his triathlon.
So you can see we’ve been busy this summer. We have lots of good days, but every time we have a special event we feel that emptiness where Eden should be. She is always in our hearts and some days we feel her presence so strongly but we still have days of sadness.