The balloon we released for Eden.
We are optimizing every possible moment we can of what's left of the summer. As I've mentioned before, we will be in hibernation for the Fall and Winter. Reagan LOVES being outside and so do we so we take her out everyday. We took her to church for the first time this weekend, she enjoyed the music and lights! Today we went to a friends fundraiser to raise money for Faith's Lodge and Now I Lay Me Down To Sleep, www.ellasgift.org. It was a great event and Reagan really enjoyed herself. The friends who hosted the fundraiser had a daughter who was stillborn and they organized a balloon release for the families attending who lost children. Being more than willing to talk to anyone (I know, so unlike me...), I approached another couple and asked about their child. It was painfully awkward and they seemed to not want to talk about their child. I love talking about Eden and want people to ask about her all the time. It makes me feel so close to her and she had such an impact on so many people that I want that to continue.
We also weaned Reagan's O2 again and she's doing great!! She's on 1 liter of O2 and we don't have to use her med tree anymore, this means that she's not thethered to a 3 foot tube instead she has 57 feet!! We are so thrilled and proud of her for doing so well. Our hard work of keeping her somewhat sheltered is paying off. We pray everyday that Fall and Winter will also go well and we can keep her heatlhy. God will be watching over her and keeping her free of illness.
Reagan has some favorite activities/items that I thought I would share:
*Her fingers/hands- she is chewing on them like they are sausages!
*Outlets- this will definitely be how she learns the word 'No'
*Getting tangled in her O2 tubing- which is really funny to watch especially when she turns completely in a circle on her butt
*Imitating us- if we scream she screams
*Grass! She digs her feet into the grass until she gets to the dirt.