Yesterday was a day of bitter sweetness, Amanda and Eden flew down to Houston which is scary and exciting at the same time. I won’t get to see my wife and one of my daughters on a regular basis and Amanda won’t get to see Reagan continue to thrive at home. But this is what Eden needs, she is a very sick girl but she is fighter, she has continued to fight ever since she was a fetus. Amanda and I will do whatever it takes for our girls, forever. We said good bye to MPLS Children’s and hello to the staff at Texas Children’s. They entire day was emotional with so many of the great staff at MPLS Children’s stopping by to see Eden, Amanda and I.
Of course we had a few hiccups getting ready to go. Eden didn’t tolerate the transport vent, her saturations kept dropping, and so after about an hour for of trying the transport decided that they would have to take turns bagging her for the ENTIRE flight! The flight was “rough” but she didn't get her sats above 76%. They also had to land in Arkansas to refuel. Because they fly at a lower altitude and at a high speed they use fuel faster. Poor Amanda, I can’t even imagine her stress level. So they made it to Houston and Eden is in her room safely. Today is huge day of evaluations. Because of the stress with the flight and being bagged, we are now concerned about the stress to her heart. We are not sure of time frames but they made it and now they are in Houston where the next chapter continues.
I am at home playing single dad with Reagan. She is now 13 lbs 13.5 oz and almost on verge of rolling over.
We wanted to say a special Thank You to all of the nurses, doctors, OT’s, RT’s, HUC’s, concierges, and staff at Children’s, you all have helped get through the last 233 days. Thank you for being an integral part of keeping our girls safe and alive. Each and every one of you had a special spot in our hearts and we will never forget you. God put you on this Earth to care for sick babies and your compassion and love for our girls helped get us through many rough days.