Too many scenarios to count

We do not really have an update but this is what we know so far. The only place in the nation that does infant transplant is in Houston, TX, this is where the list of scenarios comes in. Amanda and I have been talking about every possible option to try to plan for this, if that is even possible. All of Eden's medical information was sent to Houston yesterday, Monday. The transplant team will meet to look over her chart and information to see "if she is a good candidate." This is extremely nerve raking. It’s Eden!! how can she not be a good candidate, but it is more complicated than that. Amanda and I are also judged if we can even handle this, give all of her meds in the future, bring her down for follow-up, etc. The transplant team will meet on Wednesday the 9th, and we will find out after, we are not sure the time frame of when we will find out but we will share the information when we find out. The video below was a suggestion from one of our doctors, he said that we should send a picture or a video of Eden so that the transplant team can know Eden Hedin not Eden Hedin patient #12345……

You many have to paste the link into a new window.

http://www.youtube.com/watch?v=9pgWNFL6AzQ