The week started out quite well- both girls were requiring a lot less O2. Eden had a great Sunday/Monday and we had our long anticipated photo session scheduled for Tuesday. Scott and I prepared for at least one week to make sure all the details were worked out for our photo shoot. We were so excited to finally have the photos taken of our little girls. I woke up in the middle of the night on Monday fearing that Eden would have a bad night and we would have to reschedule again (this was our third attempt). Mother's intuition is always right, we arrived on Tuesday only to hear that Eden was requiring 100% O2! We were upset, her primary RN was upset, she was upset. We are so happy to have such amazing RN's, they both said let's just get her to calm down and move forward with the photo shoot. What happened next is just so remarkable, we put Reagan in Eden's bed for the shoot because she's more portable. They laid next to each other and fussed a little but two things happened- breast milk calmed them down and Eden's O2 needs and heartrate came down as she laid close to Reagan!! It was so sweet to see them together and know that the connection was helping Eden's sats!!! I am so excited to see how this twin connection will develop throughout the years!
Our photo shoot was awesome! Our photographer, Eydie Nelson is so calming, skilled and sweet. She did an amazing job and we are so excited to see the photos. Her website- http://www.eydienelsonphotography.com/ may have a few of our photos soon. Check it out. A BIG thank you to Eydie for taking the photos and our RN's S and R for making it happen and being so supportive!! Another special thank you to my Grandma for knitting the beautiful Santa hats for the girls!!
Since Tuesday, Eden's O2 needs have gone up and down but mostly up. She had bloodwork and x-rays done to check for pneumonia and she's being treated with antibiotics just in case. Her nitric oxide was also restarted this week. She's a REALLY hard iv stick, so this is especially stressful for her and now her iv is in her head, which is actually the best place for it because her arms or legs are not restricted with an iv and board to keep her limb straight. You really wouldn't know from her behavior that she's requiring more O2 or that she's sick because she's so happy, smiley and wiggly.
Reagan is being weaned down on her O2 and tolerating this pretty well. She is taking at least one bottle and breastfeed per day. She's also learned that breastfeeding is very relaxing and likes to be comforted that way. She hit 9 lbs this week! Her legs are arms are even getting chubby! I love it- I want fat babies!!
Thank you for praying for us and keeping us in your thoughts. Scott took a few photos attached here, he quickly snapped them without getting in Eydie's way but they still are just so cute!