Emma was born August 5, 2014 at 26 weeks gestation weighing 1 pound 12 ounces. Two weeks before Emma was born, mom and dad were a little worried as soon found out that Emma had complications including a diagnosis of duodenal atresia. At this time, they found out that Emma also had Down syndrome.
Emma was born via emergency c-section after 5 days in the hospital trying to stop pre-term labor. She was feisty from the start! After she was born it was determined that she had 3 holes in her heart, a VSD, PFO/ASD and PDA. The PDA has now closed and she will need surgery to close the VSD and PFO/ASD. Emma also has chronic lung disease from being so premature. At 3 weeks old she developed bacterial meningitis, UTI, pneumonia and was septic. She overcame all of that and at 7 weeks old she had her duodenal atresia repair. She has been working hard at eating, growing and breathing. She is now 4 months old and still tiny at 5.5 pounds. She had a g-tube surgery last Friday and will be having heart surgery in the future. Emma's family is hoping to have her home sometime in January.
What a long and amazing journey this family has been on with their sweet little blessing. Eden's Garden recognized that they likely have trouble preparing and shopping for food since their schedule with Emma's needs is so full. Gifts of Let's Dish and Target come in handy when you still need a meal while trying to get your sick kiddo home and everyone under one roof. This family is so precious and we were so honored to help them in December.